My Daddy Has Epilepsy

By Mrs. Stacey Chillemi
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Paperback, 59 pages
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My Daddy Has Epilepsy
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Young and young-at-heart parents, unite! Author Stacey Chillemi and Illustrator Iacovos Kyriakides provide spectacular proof that children really understand more than you think. Illuminating the cartoon illustrations of confusion and fear that epilepsy can cause, this new edition of My Daddy Has Epilepsy uses lively, subversive illustrations to show how to understand what epilepsy is and what to do if someone is experiencing a seizure. This picture book is sure to elicit a clear understanding—and opportunity to eliminate children's fear of epilepsy—from all who read it. About the Author STACEY CHILLEMI is constantly tempted to help others with epilepsy and help their family on what it is, how to cope with it, how to get on with their lives, and more. The Illustrations in this book are in black and white. This book is now available with color illustrations.
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Oct. 15, 2009 By Stacey Chillemi
"Published in the Asbury Park Press "
Published in the Asbury Park Press

BY ALESHA WILLIAMS
STAFF WRITER


Manalapan resident Stacey Chillemi, 33, understands the difficulties inherent in growing up with epilepsy.

Near-death experiences in her early adulthood, such as having a seizure while driving, impressed upon Chillemi the seriousness of her condition.

"My fiance, now my husband, was in the car," Chillemi said. "I realized I could have hurt myself as well as him. I had to accept the fact that I had epilepsy and not hide it from anybody."

Chillemi said she turned to libraries and bookstores to search for answers to her questions... More > about her disorder.

"At that time, all the books about epilepsy were written in medical terminology, so if you were not educated in the medical field, you had no idea what they were trying to explain," Chillemi said.

Chillemi said she published an article asking people with epilepsy to write to her with their stories. She received hundreds of letters from across the United States and Canada and interviewed about 400 people, she said.

"We were all going through the same issues and emotions," Chillemi said. "I learned, "Hey, I can't feel sorry for myself — I need to do something about it, and try to help others.' "

And so began Chillemi's career as an author, launched in 2000. She since has written eight books about epilepsy, about life and about love, including her latest, "Epilepsy and Pregnancy: What Every Woman Should Know," co-authored by Dr. Blanca Vasques (Demos), due to be published in 2005.

"Basically, in my books I try to focus on trying to help people understand first of all what the disorder is, how to accept it and teach the people in their lives to understand it so it doesn't tear a family apart, how to love themselves and get on with their lives so they can live a healthy and productive life with the disorder," Chillemi said.

In spite of living for 27 years with a condition that keeps some reclusive and anti-social, Chillemi has managed to live by those ideals. She volunteered as a mentor with the Epilepsy Foundation of New Jersey and in 2002 won the organization's Outstanding Volunteer Award. She is a featured speaker at schools, organizations and political events and also spoke before Congress with the Epilepsy Foundation in 2004 on behalf of people with epilepsy, she said.

Today, Chillemi lives in Manalapan with her husband Michael, 33, and three children, Michael, 6, Alexis, 4, and Anthony, 2, and said she often is touched by e-mails and letters from readers who say that her books have helped change their lives.

"It's hard to believe that something you wrote helped someone like that," Chillemi said. "It makes me feel very good to give people encouragement, hope, to help them realize that they are somebody — that they all have a meaning in life and just have to find that destination."

For more information about Chillemi's books, visit www.authorsden.com/staceydchillemi
Excellent book


Stacey Chillemi is 32 years old, a mother of three, a wife and writer. Her journey and reason for being is defined each day by the happiness in her children’s eyes and the people with epilepsy she has helped through her writing.
By Jenna Martin, Senior Editor
www.epilepsy.com
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Product Details

ISBN 978-1-4303-0964-2
Copyright by Stacey Chillemi (Standard Copyright License)
Publisher stacey chillemi
Published February 7, 2007
Language English
Pages 59
 
Binding Perfect-bound Paperback
Interior Ink Black & white
Dimensions (inches) 6.0 wide × 9.0 tall

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