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Lulu Sales Rank: 107175
1 Person Reviewed This Product
  • By Rachel Godfrey
    Oct 15, 2015
    This guidelines book is a necessary tool for navigating the world of Dyskeratosis Congenita and Telomere Biology Disorders. We have been so happy to have it in our hands when working with doctors and families living and working with this extremely rare disease. I have also been able to share it with others in the rare disease community to show them exactly what the condition is about. This is a must have for any DC parent advocating for their children.
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Product Details

Edition
First Edition
Publisher
Dyskeratosis Congenita Outreach, Inc.
Published
September 20, 2015
Language
English
Pages
446
Binding
Perfect-bound Paperback
Interior Ink
Full color
Weight
0.65 lbs.
Dimensions (inches)
6 wide x 9 tall
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