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Lulu Sales Rank: 53890
2 People Reviewed This Product
  • By Susanna Agardy
    Feb 20, 2014
    This book is not only about severe ME (Myalgic Encephalomyelitis). It is about all levels of ME and as it claims, it ‘… lays bare the medical, political and personal facts of ME. It describes how ME came to be confused with fatigue and Chronic Fatigue Syndrome, trivialising the disease and how ME or CFS was captured by psychiatry. The misinterpretation of ME symptoms as a functional psychosomatic disorder has led to it being ignored by mainstream medicine, depriving patients of recognition and proper diagnosis, respect and services, resulting in much abuse. Crowhurst and other contributors describe the biological underpinnings and the suffering of patients. The black cover of the book brings to mind the darkened rooms in which severely affected patients are forced to lead their lives, where they must be protected from light, sound and the normal stimuli of life which can cause additional pain and disablement. Crowhurst, a registered nurse, describes the exceptional demands on the... More > carers of ME patients, offering guidance and support along the way. He is well qualified to speak on this, having looked after his severely affected wife for 20 years. The book provides helpful information and advice, not found elsewhere, for health professionals. Policy-makers would also benefit from the insights provided. Several authors contribute chapters to this book and all tell the truth about some aspect of ME. The truth is told with soul and complete empathy. Highly recommended.< Less
  • By Kara Jane Spencer
    Jan 30, 2014
    This book is an absolutely invaluable resource to ME sufferers, carers, campaigners and Drs alike. It gives a perfect balance of revealing the lived experience of ME, the political situation of ME, the medical information of ME as well as being filled with practical guidance on how to care for someone with ME. To an ME sufferer, it is like someone stretching out an arm of understanding and hope. To someone caring for ME, it is a lifeline that will guide them through the minefield that is caring for the severe ME patient. It is a complex disease and therefore requires complex care and has a complex history. This book can give you an understanding of all three. I would highly recommend purchase.
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Product Details

December 29, 2013
Perfect-bound Paperback
Interior Ink
Black & white
1.51 lbs.
Dimensions (inches)
6 wide x 9 tall
Product ID
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