Paperback, 414 Pages
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This is the second edition of Greg's book, previously entitled "Care for Someone with Severe Myalgic Encephalomyelitis." Greatly expanded and updated it features voices from all around the world. Contributors include Natalie Boulton,Dr John L Whiting, Martin Walker, Dr Mary Schweitzer, Catherine Ashenfelter, Simon Lawrence, Dr Raymond Perrin, Carrigon, Liisa Priyanka Lugus, Laura Brown,Rob Wijbenga, Rebecca Hansen,Diane, Pixi and Michael Evison. "Breathtaking, impressive, touching and practical." Rob Wijbenga (Holland) "It will help you understand what the person with Severe ME is going through, better than any other book I know of, and help enable you to cope with such a terrible situation in the most helpful and constructive way possible." Natalie Boulton, maker of Voices From the Shadows.
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Feb 20, 2014This book is not only about severe ME (Myalgic Encephalomyelitis). It is about all levels of ME and as it claims, it ‘… lays bare the medical, political and personal facts of ME. It describes how ME came to be confused with fatigue and Chronic Fatigue Syndrome, trivialising the disease and how ME or CFS was captured by psychiatry. The misinterpretation of ME symptoms as a functional psychosomatic disorder has led to it being ignored by mainstream medicine, depriving patients of recognition and proper diagnosis, respect and services, resulting in much abuse. Crowhurst and other contributors describe the biological underpinnings and the suffering of patients. The black cover of the book brings to mind the darkened rooms in which severely affected patients are forced to lead their lives, where they must be protected from light, sound and the normal stimuli of life which can cause additional pain and disablement. Crowhurst, a registered nurse, describes the exceptional demands on the... More > carers of ME patients, offering guidance and support along the way. He is well qualified to speak on this, having looked after his severely affected wife for 20 years. The book provides helpful information and advice, not found elsewhere, for health professionals. Policy-makers would also benefit from the insights provided. Several authors contribute chapters to this book and all tell the truth about some aspect of ME. The truth is told with soul and complete empathy. Highly recommended.< Less
Jan 30, 2014This book is an absolutely invaluable resource to ME sufferers, carers, campaigners and Drs alike. It gives a perfect balance of revealing the lived experience of ME, the political situation of ME, the medical information of ME as well as being filled with practical guidance on how to care for someone with ME. To an ME sufferer, it is like someone stretching out an arm of understanding and hope. To someone caring for ME, it is a lifeline that will guide them through the minefield that is caring for the severe ME patient. It is a complex disease and therefore requires complex care and has a complex history. This book can give you an understanding of all three. I would highly recommend purchase.
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- stonebird.co.uk (Standard Copyright License)
- December 29, 2013
- Perfect-bound Paperback
- Interior Ink
- Black & white
- 1.51 lbs.
- Dimensions (inches)
- 6 wide x 9 tall
- Product ID
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