“Parenting Adult Special Needs” is a collection of daily blog posts chronicling our family’s process as our special needs daughter turned 21 and “aged out” of her school system. It’s all here: our steps, missteps, failings, successes, emotional highs and lows, bureaucratic bumblings and staff saves. The posts that became this book were an outgrowth of my professional blogging as a couples psychotherapist and conversations with friends and colleagues. One, a journalist, proffered, “This is a story nobody is telling.” My hope is that by extending my hand to you and guiding you through the pages of our family’s journey, you will feel less alone; that perhaps something in the pattern of our footsteps will offer guidance in your family’s quest to find a safe and satisfying adulthood for your special needs child. With illustrations by our daughter and an extensive list of post-secondary and other resources for parents.
“A... More > must-read for parents of special needs children nearing adulthood.” – Kirkus Reviews< Less
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By Florence Kraut
Nov 24, 2013
The beauty of "This Crazy Quilt: Parenting Adult Special Needs One Day At A Time," lies in the author's totally fearless descriptions of her family's journey through the first year of her special needs daughter's transition to adulthood and independence. Jill tells her story with openness and honesty, sharing the path they traveled from the beginning, with all its bumps and curves and dead ends. We follow along with her each day, reading her blogs about the big things and the little: the frustrating paperwork, the exhilarating meetings, the worrisome or happy phone calls from her daughter, even the furnishings of her daughter's apartment. The reader cannot help but learn from the author's detailed and very particular experiences which sometimes made me smile or laugh, sometimes brought a lump to my throat, but always enlightened me. The fears and worries and guilt the author felt as her daughter grew up and approached adulthood will resonate with all parents, not only... More > parents of special needs children. And the hope Jill and her family sustained from the beginning that their daughter would find a way to live successfully in the larger world, is a shining example of putting one foot in front of the other, living one day at a time, never, ever giving up and never, ever finishing the process. Read this book!< Less
Not only have I read this book NUMEROUS times BUT I thought it so powerful and so useful that I bought 25 copies and gave them out to everyone I knew who had a child with special needs age 16 and above. This Crazy Quilt is detailed, yet easy to read, humorous, heart wrenching and provides a huge message of HOPE that we all need. Parenting a child with special needs who is transitioning into the adult world is beyond difficult - I know , I've lived it - not so successfully - not for lack of trying,not for lack of being 'in the loop'. READ THIS BOOK, relish Jill's grounded writing style and come away with HOPE,, YOUR CHILD CAN FLOURISH!
I worked on this book and Jill's blog, so I may seem biased. But reading Jill's daily posts has forever altered my view of special needs children, and their parents. As a parent myself, I found surprising connections to the experiences Jill describes. Yes, this is a must read for parents of special needs children, but, frankly, I think just about any parent can find meaning and fellowship in its pages.
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