"I don't think I'm coming home. Something doesn't feel right," Julie said. She was right. Her lungs functions had dropped to even lower levels and doctors were unsure of what to do next. For the first time in our marriage, I saw my wife using oxygen. With the air flowing, her oxygen levels were 91%. Without it, they were 62%. My Julie's lungs were dying. As the days passed, I would witness her health decline further. As Julie lay motionless throughout the night, I would hold her as we listened to the steady, unrelenting grind of her feeding tube pump. On this hospitalization, the words: End Stage Cystic Fibrosis were spoken for the first time. A double lung transplant would be the only way to save her life. If we could keep her alive long enough, she could walk out of the hospital on her own. She would have to rely on her courage to breathe to do it.
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By Stephanie Wenther
Mar 5, 2013
Hard to write a review for such a heartbreaking story! This book was very well written, I could not put the darn thing down! As a spouse I was able to put myself in his shoes and it was devastating to imagine everything that he had to go through. What a blessing that Julie has Roy, he was her advocate in many ways and it makes me wonder if he had not been there to push for accountability from her doctors whether she would still be here today. They were put in each others lives for a reason and I am so glad that they have many years left to celebrate their wonderful relationship. We all tend to take life for granted, this book was a great reminder to me that life is a gift and we have to enjoy that gift while we are here because we never know when our time will be over.
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