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35 results for "cystic fibrosis"
Genetics of Cystic Fibrosis: A Comprehensive Review By Nadia Arora, ND
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This review article is focused on genetic and clinical characteristics of cystic fibrosis (CF), a hereditary disorder that causes electrolyte and fluid transport imbalances. Cystic fibrosis has been... More > considered primarily a disease of European population. This article provides statistics from the latest studies and explores recent data from WHO to demonstrate an important concept - cystic fibrosis affects all races and ethnic groups, but due to the lack of awareness, it is often unrecognized. This review covers in-depth classification of types of CF and discusses adult, neonatal and prenatal screening, including newest genetic screening. A new concept of evolutionary advantage of some hereditary conditions has been recently introduced in medical sciences. Using the data from latest anthropologic and clinical studies, we provide evidence in support of the hypothesis that gene for cystic fibrosis developed under evolutionary pressure and confers beneficial effect to the gene carriers.< Less
Breathe: Living a Purposeful Life with Cystic Fibrosis By Jake Shavers
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Breathe: Living a Purposeful Life with Cystic Fibrosis ©, is the inspirational autobiography of Jake Shavers. At 41 years old, Jake Shavers is beating the odds. Born with Cystic Fibrosis, a... More > genetic chronic disease that affects the lungs and digestive system, he bravely fights the debilitating illness. Given the statistics, he was not expected to live to see the age of 20. Even now, he has faced and conquered near-death experiences 5 times. Against all odds, including a double lung transplant and a kidney transplant, Jake continues to thrive. His positive attitude and conviction in his faith gave him the strength and courage to compete in a half-marathon, exercise daily and give back through his work with children and adults facing similar situations. Jake attributes his success to his faith and knows he is here for a very special reason.< Less
Breathe: Living a Purposeful Life with Cystic Fibrosis By Jake Shavers
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Breathe: Living a Purposeful Life with Cystic Fibrosis ©, is the inspirational autobiography of Jake Shavers. At 41 years old, Jake Shavers is beating the odds. Born with Cystic Fibrosis, a... More > genetic chronic disease that affects the lungs and digestive system, he bravely fights the debilitating illness. Given the statistics, he was not expected to live to see the age of 20. Even now, he has faced and conquered near-death experiences 5 times. Against all odds, including a double lung transplant and a kidney transplant, Jake continues to thrive. His positive attitude and conviction in his faith gave him the strength and courage to compete in a half-marathon, exercise daily and give back through his work with children and adults facing similar situations. Jake attributes his success to his faith and knows he is here for a very special reason.< Less
Tales from the Rose Garden: A Look at Life with Cystic Fibrosis By Kerri Marks
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Cystic Fibrosis--known to children as "65 roses"--is a devastating genetic disease affecting the lungs and pancreas. In this work, patients and their families share their stories of... More > triumph and grief, incomparable strength, and unwavering hope. Proceeds from this book benefit the Cystic Fibrosis Foundation. Help us find a cure for Cystic Fibrosis.< Less
Sophia's Camping Trip: Adventures of a child with cystic fibrosis By Katie Schulz
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Sophia, a young girl with cystic fibrosis, has a dream of going on a camping adventure with her family. She worries that her equipment and medication needs will prevent the trip from happening.... More > Discover how, with a little planning, her dreams come true.< Less
A Way of Life: Cystic Fibrosis Nutrition Handbook and Cookbook (3rd Edition) By Mary Marcus, MS, RD et al.
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This handbook and cookbook is designed to help explain how CF affects the human body, and it explains the role diet plays in managing the disease. The initial sections of the handbook describe the... More > challenge of eating enough of the right types of food to support growth and development, fight infections and lead a productive life. These sections are followed by guidelines for creating a healthy diet that meets the needs of people with CF and tips for applying those guidelines to day-to-day living. The last half of the book contains more than 130 favorite recipes provided by individuals with CF and their families and by University of Wisconsin Hospital and Clinics Clinical Nutrition Department. These easy-to-prepare, appealing foods can help add necessary nutrients and good taste to diets for people with CF.< Less
Breathe By Amanda Clancy
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A magazine to help women with Cystic Fibrosis
Constellations' Flint (A Short Story) By Kimberly Welsh
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Ever since Darwin first explained his theory of evolution, mankind has wondered what improvements will be made on his design, and how much longer he'll have to wait. But what if the next big... More > mutation has already begun to happen right under his nose? 100% of the author's profit from the sale of this short story will be donated to the Cystic Fibrosis Foundation< Less
Julie: The Courage to Breathe By Roy E. Ice
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"I don't think I'm coming home. Something doesn't feel right," Julie said. She was right. Her lungs functions had dropped to even lower levels and doctors were unsure of what to do next.... More > For the first time in our marriage, I saw my wife using oxygen. With the air flowing, her oxygen levels were 91%. Without it, they were 62%. My Julie's lungs were dying. As the days passed, I would witness her health decline further. As Julie lay motionless throughout the night, I would hold her as we listened to the steady, unrelenting grind of her feeding tube pump. On this hospitalization, the words: End Stage Cystic Fibrosis were spoken for the first time. A double lung transplant would be the only way to save her life. If we could keep her alive long enough, she could walk out of the hospital on her own. She would have to rely on her courage to breathe to do it.< Less
Julie: The Courage to Breathe By Roy E. Ice
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I don't think I'm coming home. Something doesn't feel right, Julie said. She was right. Her lungs functions had dropped to even lower levels and doctors were unsure of what to do next. For the first... More > time in our marriage, I saw my wife using oxygen. With the air flowing, her oxygen levels were 91%. Without it, they were 62%. My Julie's lungs were dying. As the days passed, I would witness her health decline further. As Julie lay motionless throughout the night, I would hold her as we listened to the steady, unrelenting grind of her feeding tube pump. On this hospitalization, the words: End Stage Cystic Fibrosis were spoken for the first time. A double lung transplant would be the only way to save her life. If we could keep her alive long enough, she could walk out of the hospital on her own. She would have to rely on her courage to breathe to do it.< Less