A Melanated Survivor's Guide to Surviving Multiple Sclerosis

A Melanated Survivor's Guide to MS. YOU MATTER! We understand that the diagnosis can make you feel alone in a world that already excludes you. We understand that many of the support groups, advocacy groups, neurologists, physical therapists, occupational therapists, nutritionists, therapists, etc don’t look like you and don't relate to your surviving this diagnosis as a Black person. We understand that this can lead to you feeling unheard and misunderstood within the community that was designed to support you with surviving this diagnosis. We understand that the diagnosis adds a new complicated layer to your existence as a Black person in America. You not only have to navigate with your new body, but also navigate a world riddled with systemic racism, and oppression; along with navigating the ugly aspects of a healthcare system that was intended to support and advocate for your wellness. We understand that you need your voice to be heard! This journal is meant to be a tool to give you a voice that can’t be silenced. This journal is designed to help you keep track of your wellness. The hope is that the outcome will provide you with tangible data to provide your healthcare team, and for you to be your biggest advocate! There are prompts that will ask you to tune in with yourself in a way that will assist you in appreciating where you are every step of the journey. The journal is not meant to be used as medical advice or give best practices. It’s a tool to help you keep track of the steps you are taking daily that you can provide to your doctor/ healthcare practitioner.  As a Melanated Survivor we want your voice to be heard! YOU are AMAZING! Remember, no matter where you are in your journey with this diagnosis, YOU are SURVIVING! For more info visit melanatedsurvivor.com