When Benjamin Byer was diagnosed with ALS in 2002 at the age of 31, Ben and his parents, Barbara and Stephen Byer, had nowhere to turn. The medical community provided little support beyond measuring his decline every six months. The Byers identified ways to minimize symptoms and slow progression which benefited Ben and dozens of other patients. The Byers, founders and directors of ALS Worldwide, have concentrated their time and energy on the daily struggles ALS patients and their families face for more than twenty years. Online visits continue to provide a place for patients and their families to receive individual support through alsworldwide.org. Pathways Through the ALS Storm provides a focused discussion of what they have gleaned.